by Omaha, Nebraska – A Nebraska woman who was born without a brain has just celebrated her 20th birthday, astonishing doctors and inspiring thousands with her strength and resilience. Alex Simpson, from Omaha, was diagnosed at birth with hydranencephaly, a rare and often fatal neurological condition, according to her parents, Shawn and Lorena Simpson, who shared their remarkable story with KETV News.
Defying an Impossible Diagnosis
When Alex was born, doctors told the Simpson family that she would not survive past the age of four. But two decades later, she continues to beat the odds — and her parents believe it’s because of love and faith.
“[Hydranencephaly] means that her brain is not there,” Shawn explained. “Technically, she has about half the size of my pinky finger of her cerebellum in the back part of her brain, but that’s all that’s there.”
Despite that, Alex has continued to live far beyond medical expectations, surrounded by unwavering family support.
Love and Faith at the Core
When asked what they think keeps Alex alive and strong, both Shawn and Lorena shared the same answer: love.
“Twenty years ago, we were scared, but faith is really what kept us alive,” Shawn said.
“She’s a fighter,” added Lorena.
Though Alex cannot see or hear, her parents say she still knows when they are near.
“You can see that when I went up there and talked to her a little bit ago, she was looking for me,” Shawn said, describing how Alex responds to his voice and presence.
A Family United by Strength
The Simpson family credits their shared faith and unbreakable bond for getting them through the hardest moments.
Their 14-year-old son, SJ, says having Alex as a sister has taught him pride, compassion, and empathy.
“When people ask about my family, the first thing I start with is Alex, my disabled sister,” SJ said proudly.
He added that Alex can sense the emotions of those around her, even without sound or sight.
“Say somebody’s stressed around her — nothing will even happen — it could be completely silent, but Alex will know. She’ll feel something,” SJ shared.
Understanding Hydranencephaly
According to the Cleveland Clinic, hydranencephaly is a rare congenital brain disorder that occurs in approximately 1 in 5,000 to 1 in 10,000 pregnancies. The condition develops when parts of the brain’s cerebral hemispheres are missing and replaced by fluid-filled sacs.
Children with this condition typically face severe developmental challenges, and many do not survive beyond their first year of life. Alex Simpson’s 20-year milestone is, therefore, an extraordinary exception — one that continues to inspire families facing similar diagnoses.
A Testament to Hope
For the Simpson family, Alex’s journey is a daily reminder of strength, love, and the power of belief.
“She’s our miracle,” said Lorena. “Every day with her is a gift.”
The family hopes that by sharing their story, they can bring comfort and encouragement to others going through similar experiences.
“If we can help even one parent believe their child can make it, then sharing Alex’s story is worth it,” Shawn said.
What do you think of Alex’s incredible journey?
Do you believe love and faith can help people overcome impossible odds? Share your thoughts and wishes for Alex in the comments below!
